Andrew McFadyen

Executive Director, The Isaac Foundation, Canada

Andrew McFadyen is the Executive Director for The Isaac Foundation, a non-profit organization he founded to fund innovative research projects that aim to find a cure for MPS, a rare and progressive disease affecting his eldest son.

Andrew has led numerous advocacy efforts and helped to shape public policy throughout Canada with respect to availability of treatments for children dying from rare diseases. He has led efforts in Canada to revolutionize how they best implement a healthcare system that works for those with rare disorders, coordinating closely with governments, researchers, clinicians and industry.

In 2013, McFadyen created a second non-profit corporation called Equal Access for Rare Disorders and has continued work fighting for fair and equitable access to treatments for children affected by rare diseases throughout Canada and the United States. Andrew is also a member of the NYU working group on Compassionate Use and Expanded Access.

He lives in Campbellford, Ontario with his wife Ellen, and their two children, Isaac and Gabriel.